Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention |
| |
| Authors: | Elizabeth L Sampson Ingela Thuné-Boyle Riitta Kukkastenvehmas Louise Jones Adrian Tookman Michael King Martin R Blanchard |
| |
| Affiliation: | (1) Marie Curie Palliative Care Research Unit, Department of Mental Health Sciences, Royal Free and University Medical School, London, UK;(2) Department of Mental Health Services for Older People, Barnet Enfield and Haringey Mental Health Trust, London, UK;(3) Department of Mental Health Sciences, Royal Free and University Medical School, London, UK;(4) Department of Palliative Care, Royal Free Hospital NHS Trust, London, UK;(5) Department of Mental Health Care for Older People, Camden and Islington Mental Health and Social Care Trust, London, UK |
| |
| Abstract: | Background There is increasing interest in improving the quality of care that patients with advanced dementia receive when they are dying. Our understanding of the palliative care needs of these patients and the natural history of advanced disease is limited. Many people with advanced dementia have unplanned emergency admissions to the acute hospital; this is a critical event: half will die within 6 months. These patients have complex needs but often lack capacity to express their wishes. Often carers are expected to make decisions. Advance care planning discussions are rarely performed, despite potential benefits such more consistent supportive healthcare, a reduction in emergency admissions to the acute hospital and better resolution of carer bereavement. |
| |
| Keywords: | |
| 本文献已被 SpringerLink 等数据库收录！ |
|
