青少年糖尿病患儿生活质量及其与家庭环境的相关性研究

目的了解青少年糖尿病患儿生活质量、家庭环境的现状，探讨两者之间的关系，为糖尿病患儿的家庭管理提供依据。方法运用儿童生活质量测定量表（PedsQL4．0）和家庭环境量表中文版（FES-CV）对58例青少年糖尿病患儿及其家长进行调查，分析青少年糖尿病患儿生活质量及其与家庭环境的相关性。结果糖尿病患儿的躯体功能、学校功能、心理社会功能及总体生活质量均显著低于健康儿童；糖尿病患儿家庭的矛盾性、控制性高于常模，知识性低于常模；患儿的生活质量与家庭知识性、控制性呈正相关，家庭的成功性及控制性对患儿生活质量的影响较大。结论应促进患儿与家长关于糖尿病管理责任的协商，减少家庭冲突，有效地控制疾病，提高生活质量。

Research in relationship of quality of life and family environment of children and adolescents with diabetes

Objective To investigate the status quo of quality of life and family environment of children and adolescents with diabetes, also to explore the relationship between family environment and the quality of life, so as to give some support for family nursing. Methods A total of 58 diabetic children and adolescents were asked to complete Pediatric Quality of Life Inventory, meanwhile their parents were asked to complete the family environment scale, relativity of life quality of diabetic children and adolescents with family environment was analyzed. Results The physical function, school function, psychosocial health and total quality of life of diabetic children and adolescents＂ were lower than healthy children; family conflicts and control were higher than normal, while knowledge was lower than normal. Their quality of life was positively correlated with family knowledge and control, family control and success contributed a lot to life quality. Conclusions The health professionals should improve the communication between children and parents, sharing the diabetes responsibility, reduce the family conflict, in order to manage diabetes effectively and improve the quality of life.