Construction and psychometric testing of the EMPATHIC questionnaire measuring parent satisfaction in the pediatric intensive care unit |
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Authors: | Jos M. Latour Johannes B. van Goudoever Hugo J. Duivenvoorden Marcel J. I. J. Albers Nicolette A. M. van Dam Eugenie Dullaart Marc van Heerde Marjorie de Neef Carin W. M. Verlaat Elise M. van Vught Jan A. Hazelzet |
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Affiliation: | 1. Division of Pediatric Intensive Care, Department of Pediatrics, Erasmus MC, Sophia Children??s Hospital, Room Sp-1539, P.O. Box 2060, 3000 CB, Rotterdam, The Netherlands 2. Division of Neonatology, Department of Pediatrics, Erasmus MC, Sophia Children??s Hospital, P.O. Box 2060, 3000 CB, Rotterdam, The Netherlands 3. Department of Pediatrics, AMC, Emma Children??s Hospital, Amsterdam, The Netherlands 4. Department of Pediatrics, VU University Medical Center, Amsterdam, The Netherlands 5. Department of Medical Psychology and Psychotherapy, Netherlands Institute for Health Science, Erasmus University Medical Center, Rotterdam, The Netherlands 6. Pediatric Intensive Care Unit, Beatrix Children??s Hospital, University Medical Center Groningen, Groningen, The Netherlands 7. Pediatric Intensive Care Unit, Leiden University Medical Center, Leiden, The Netherlands 8. Pediatric Intensive Care Unit, Maastricht University Medical Center, Maastricht, The Netherlands 9. Department of Pediatric Intensive Care, VU University Medical Center, Amsterdam, The Netherlands 10. Pediatric Intensive Care Unit, AMC, Emma Children??s Hospital, Amsterdam, The Netherlands 11. Pediatric Intensive Care Unit, University Medical Center St Radboud, Nijmegen, The Netherlands 12. Pediatric Intensive Care Unit, University Medical Center Utrecht, Wilhelmina Children??s Hospital, Utrecht, The Netherlands
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Abstract: | Purpose To construct and test the reliability and validity of the EMpowerment of PArents in THe Intensive Care (EMPATHIC) questionnaire measuring parent satisfaction in the pediatric intensive care unit (PICU). Methods Structured development and psychometric testing of a parent satisfaction-with-care instrument with the results of two cohorts of parents (n?=?2,046) from eight PICUs in the Netherlands. Results In the first cohort, 667/1,055 (63%) parents participated followed by 551/991 (56%) parents in the second cohort. The empirical structure of the instrument was established by confirmatory factor analysis with the first sample of parents confirming 65 statements within five theoretically conceptualized domains: information, care and cure, organization, parental participation, and professional attitude. The standardized factor loadings were greater than 0.40 in 63 statements. Cronbach??s ??, a measure of reliability, per domain ranged from 0.73 to 0.93 in both cohorts with no significant difference documenting the reliability over time. Beside rigorous content and face validity, the congruent validity of the instrument showed adequate correlation with four gold standard questions measuring overall satisfaction. The non-differential validity was confirmed with no significant differences between the population characteristics and the domains, except that parents with a child for a surgical admission were more satisfied on information issues. Conclusions The final EMPATHIC questionnaire incorporates 65 statements. The empirical structure of the satisfaction statements and domains was satisfactory. The reliability and validity proved to be adequate. The EMPATHIC questionnaire is a valid quality performance indicator to measure quality of care as perceived by parents. |
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