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Essential levels of health information in Europe: An action plan for a coherent and sustainable infrastructure
Affiliation:1. EUBIROD Network, Hub for International health ReSearch (HIRS), Perugia, Italy;2. Serectrix snc, Pescara, Italy;1. Department of Radiology and Biomedical Imaging, University of California, San Francisco, San Francisco, California;2. Department of Radiology and Imaging Sciences, Emory University, Atlanta, Georgia;3. Department of Radiology, Johns Hopkins University School of Medicine, Baltimore, Maryland;1. Institute of Analytical Chemistry and Radiochemistry, Center for Chemistry and Biomedicine, Leopold-Franzens University, Innrain 80-82, 6020 Innsbruck, Austria;2. Theoretical Chemistry Division, Institute of General, Inorganic and Theoretical Chemistry, Center for Chemistry and Biomedicine, Leopold-Franzens University, Innrain 80-82, 6020 Innsbruck, Austria
Abstract:The European Union needs a common health information infrastructure to support policy and governance on a routine basis. A stream of initiatives conducted in Europe during the last decade resulted into several success stories, but did not specify a unified framework that could be broadly implemented on a continental level.The recent debate raised a potential controversy on the different roles and responsibilities of policy makers vs the public health community in the construction of such a pan-European health information system.While institutional bodies shall clarify the statutory conditions under which such an endeavour is to be carried out, researchers should define a common framework for optimal cross-border information exchange.This paper conceptualizes a general solution emerging from past experiences, introducing a governance structure and overarching framework that can be realized through four main action lines, underpinned by the key principle of “Essential Levels of Health Information” for Europe.The proposed information model is amenable to be applied in a consistent manner at both national and EU level. If realized, the four action lines outlined here will allow developing a EU health information infrastructure that would effectively integrate best practices emerging from EU public health initiatives, including projects and joint actions carried out during the last ten years.The proposed approach adds new content to the ongoing debate on the future activity of the European Commission in the area of health information.
Keywords:Health information  European Union  Cross-border data exchange  Privacy and Data Protection
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