The Imperforate Anus Psychosocial Questionnaire (IAPSQ): Its construction and psychometric properties |
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Authors: | Margret Nisell Ulf Brodin Kyllike Christensson Per-Anders Rydelius |
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Affiliation: | (1) Child and Adolescent Psychiatric Unit, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden;(2) The Medical Statistics Unit, Department for Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden;(3) Reproductive and Perinatal Health Care Unit, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden |
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Abstract: | The origin of the present study was to develop the liaison work between the disciplines of child and adolescent psychiatry and paediatric surgery and nursing, so as to improve the quality of treatment and care of a group of children with imperforate anus (IA) and their families. Imperforate anus is a congenital disease involving a deformity of the anorectum. The early surgery and invasive follow-up treatment associated with IA may affect the child psychosocially, including the child-parent relationship. By developing and testing a questionnaire for children born with anorectal anomalies, a tool for measuring psychosocial functioning can be realized. |
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