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Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research
Authors:Jennifer A. Oberg EdD  MA  Julia L. Glade Bender MD  Elizabeth G. Cohn RN  DNS  Marilyn Morris MD  MPH  Jenny Ruiz BA  Wendy K. Chung MD  PhD  Paul S. Appelbaum MD  Andrew L. Kung MD  PhD  Jennifer M. Levine MD  MSW
Affiliation:1. Department of Pediatrics, Division of Hematology, Oncology, Stem Cell Transplantation, Columbia University Medical Center, New York, New York;2. School of Nursing, Division of Academics, Columbia University Medical Center, New York, New York;3. Department of Pediatrics, Division of Pediatric Critical Care, Columbia University Medical Center, New York, New York;4. College of Physicians and Surgeons, Columbia University Medical Center, New York, New York;5. Department of Pediatrics and Medicine, Division of Pediatric Molecular Genetics, Columbia University Medical Center, New York, New York;6. Department of Psychiatry, Division of Law, Ethics, and Psychiatry, Columbia University Medical Center, New York, New York
Abstract:
Keywords:informed consent  pediatric oncology  whole genome sequencing
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