Cross-cultural French-Canadian adaptation and psychometric assessment of the Italian Spine Youth Quality of Life (ISYQOL) questionnaire |
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| Institution: | 1. École de réadaptation, Université de Montréal, 7077 Av du Parc, Montreal, Quebec, Canada, H3N1×7;2. Sainte-Justine University Hospital Center, 3175 Chem. de la Côte-Sainte-Catherine, Montreal, Quebec, Canada, H3T1C5;3. Department of Physical Therapy, Faculty of Rehabilitation Medicine, University of Alberta, 2-50 Corbett Hall, Edmonton, Alberta, Canada, T6G2G4;5. University La Statale, Via Festa del Perdono 7, 20121 Milan, Italy;6. IRCCS Istituto Ortopedico Galeazzi, Via Riccardo Galeazzi 4, 20161 Milan, Italy;1. Department of Neurosurgery, Henry Ford Hospital, 2799 West Grand Boulevard, Detroit, MI 48202 USA;2. Department of Public Health Sciences, Henry Ford Hospital, 2799 West Grand Boulevard, Detroit, MI 48202 USA;3. Department of Neurosurgery, University of Michigan, 1500 East Medical Center Drive #5201, Ann Arbor, MI 48109 USA;4. Department of Orthopaedic Surgery, University of Michigan, 1500 East Medical Center Drive, Floor 2 Reception B, Ann Arbor, MI 48109 USA;1. Consultant Spine surgeon, Department of Orthopaedics and Spine Surgery, Ganga Hospital, Coimbatore, Tamil Nadu. India;2. Fellow in spine surgery, Department of Orthopaedics and Spine Surgery, Ganga Hospital, Coimbatore, Tamil Nadu. India;3. Senior Consultant and Academic Director, Department of Anaesthesia, Ganga Hospital, Coimbatore, Tamil Nadu. India;4. Consultant Spine surgeon, Department of Orthopaedics and Spine Surgery, Ganga Hospital, Coimbatore, Tamil Nadu. India;5. Chairman and Director, Department of Orthopaedics and Spine Surgery, Ganga Hospital, Coimbatore, Tamil Nadu. India;1. Department of Orthopaedic Surgery, Waikato Hospital, Hamilton, 3204, New Zealand;2. Department of Surgery, University of Auckland, Auckland, New Zealand;1. Department of Orthopedic Surgery, Washington University School of Medicine, 660 S Euclid Ave, St. Louis, MO 63110 USA;2. Department of Neurosurgery, Northwell Health Chair of Neurosurgery at North Shore University Hospital and Long Island Jewish Medical Center, NY, USA;3. Institute for Neurology and Neurosurgery, Northwell Health and Chair of Neurosciences, Donald and Barbara Zucker School of Medicine at Hofstra Northwell, NY, USA;1. Geisinger Commonwealth School of Medicine, 525 Pine St., Scranton, PA 18510, USA;2. Department of Spine Surgery, Geisinger Musculoskeletal Institute, 3 W. Olive St., Scranton, PA 18508, USA |
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| Abstract: | BACKGROUND CONTEXTIdiopathic scoliosis (IS) can significantly alter the quality of life of adolescents. Some of the available questionnaires in French measuring the quality of life in this population show weak psychometric properties. The newly developed Italian Spine Youth Quality of Life (ISYQOL) questionnaire promises better properties.PURPOSETo provide a French-Canadian version of the ISYQOL and to verify its psychometric characteristics.STUDY DESIGNProspective validation of a cross-cultural adaptation of the ISYQOL questionnaire.PATIENT SAMPLEA total of 111 participants with idiopathic scoliosis (77.5% female, 10–18 years old, mean Cobb angle=28°) were included in the study.OUTCOME MEASUREThe French-Canadian version of the Italian Spine Youth Quality of Life (ISYQOL-F) questionnaire.MATERIALS AND METHODSThe ISYQOL was translated into French using a forward-backward approach. We then verified the understanding of the translated items with two scoliosis experts and 10 adolescents. Afterward, 111 adolescents with IS were recruited by convenience at the scoliosis clinic and they completed the ISYQOL on three occasions (before seeing the specialist, 1 week, and 2 weeks after). Cronbach's alpha, intra-class (ICC), and Pearson correlation coefficients were used to respectively determine internal consistency, test-retest reliability, and concurrent validity with the SRS-22r and SF-12. The standard error of measurement (SEM) and 95% confidence minimal detectable change (MDC95) were also calculated. The ceiling effect was quantified as the percentage of participants who scored the maximum on ISYQOL-F.RESULTSThe ISYQOL-F showed good internal consistency with a Cronbach alpha of 0.81 and 0.85 respectively for items 1–13 (n=55; ISYQOL-F mean score ± SD = 63.9±13.5) and 1–20 (n=56; ISYQOL-F mean score ± SD=60.7±10.3). Test-retest reliability was excellent (ICC3,1=0.94). The SEM is 3.1 and the MDC95 is 8.6. Correlations between ISYQOL-F and SRS-22r and between ISYQOL-F and SF-12 were moderate for total scores (r=0.56 and 0.50 respectively, p<.001), but low for each domain (between 0.20 and 0.48, p<.05). No significant ceiling effects were observed for ISYQOL-F (≤2.5%). In contrast, ceiling effects ranged from 3.6% to 30.6% for SRS-22r and 0%–68.5% for SF-12.CONCLUSIONSThe internal consistency and reliability of ISYQOL-F are good. The total score correlates moderately with the SRS-22r and SF-12. Unlike SRS-22r, the ISYQOL-F does not appear to have a ceiling effect. The ISYQOL–F may thus be suitable to assess quality of life in a population of French-Canadian adolescents with IS. |
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