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The ethics of relationality in implementation and evaluation research in global health: reflections from the Dream-A-World program in Kingston,Jamaica
Authors:Nicole A. D’souza  Jaswant Guzder  Frederick Hickling  Danielle Groleau
Affiliation:1.Department of Psychiatry, Division of Social and Transcultural Psychiatry,McGill University,Montreal,Canada;2.CARIMENSA (Caribbean Institute of Mental Health and Substance Abuse),University of the West Indies,Kingston,Jamaica
Abstract:

Background

Despite recent developments aimed at creating international guidelines for ethical global health research, critical disconnections remain between how global health research is conducted in the field and the institutional ethics frameworks intended to guide research practice.

Discussion

In this paper we attempt to map out the ethical tensions likely to arise in global health fieldwork as researchers negotiate the challenges of balancing ethics committees’ rules and bureaucracies with actual fieldwork processes in local contexts. Drawing from our research experiences with an implementation and evaluation project in Jamaica, we argue that ethical research is produced through negotiated spaces and reflexivity practices that are centred on relationships between researchers and study participants and which critically examine issues of positionality and power that emerge at multiple levels. In doing so, we position ethical research practice in global health as a dialectical movement between the spoken and unspoken, or, more generally, between operationalized rules and the embodied relational understanding of persons.

Summary

Global health research ethics should be premised not upon passive accordance with existing guidelines on ethical conduct, but on tactile modes of knowing that rely upon being engaged with, and responsive to, research participants. Rather than focusing on the operationalization of ethical practice through forms and procedures, it is crucial that researchers recognize that each ethical dilemma encountered during fieldwork is unique and rooted in social contexts, interpersonal relationships, and personal narratives.
Keywords:
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