Family quality of life among families with a child who has a severe neurodevelopmental disability: Impact of family and child socio-demographic factors |
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| Affiliation: | 1. Child Development & Pediatric Neurology Service, Meuhedet-Northern Region, Simtat Atlit 6, Haifa, Israel;2. Rappaport Faculty of Medicine, Technion Israel Institute of Technology, Haifa, Israel;3. Department of Pediatrics, Bnei Zion Hospital, Haifa, Israel;4. Beit Issie Shapiro, Ra’anana, Israel;1. McGill University, Canada;2. University of Illinois at Chicago, USA;1. Department of Psychological and Brain Sciences, University of Massachusetts Amherst, Tobin Hall 509, 135 Hicks Way, Amherst, MA 01003, USA;2. College of Education, University of Florida, 618 SW 12th Street, Norman Hall, Gainesville, FL, 32601, USA;3. Lynch School of Education, Boston College, 140 Commonwealth Avenue, Campion Hall, Room 239B, Newton, MA 02467, USA;1. School of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan;2. Department of Physical Medicine and Rehabilitation, National Cheng Kung University Hospital, Tainan, Taiwan;3. School of Occupational Therapy, College of Medicine, National Taiwan University, Taipei, Taiwan;4. Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital, Taipei, Taiwan |
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| Abstract: | We aimed to examine family quality of life (FQOL) of Northern Israeli families having a child with a severe neurodevelopmental disability and its relation to socio-demographics. The cohort included caregivers of 70 children ages (mean ± standard deviation) 5.36 ± 3.53 years. Families were two-parent (85.7%), lived in the periphery (67.1%) and included Jews (60%), Muslims (18.6%), Druze (14.3%) and Christians (7.1%). Religiosity included: secular (38.6%), traditional (31.4%), religious (30%). Children's diagnosis included autistic spectrum disorder (41.4%), intellectual disability (21.4%), cerebral palsy (17.1%), genetic syndromes (17.1%) and sensorineural hearing loss (2.9%). Degree of support (1-minimal,5-greatest) required by the child was 3.67 ± 1.28 for physical and 3.49 ± 1.36 for communication. Primary caregivers completed the FQOL Survey. Domain scores were highest for family relations and lowest for financial well-being. Dimension scores were highest for importance and lowest for opportunities. Overall FQOL approximated average. Jewish families and residents of a major urban area reported higher and more religious families reported lower overall FQOL. Regression analysis found ethnicity contributing to overall FQOL and domain scores with residence contributing to support from services. Ethnicity and child dependence contributed to dimension scores. Northern Israeli families having a child with a severe neurodevelopmental disability report average FQOL scores. However, family and child dependence characteristics affect FQOL scores. Professionals working with these families should consider FQOL information when making recommendations. |
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| Keywords: | Family quality of life Neurodevelopmental disability Socio-demographics |
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