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Nutrition Algorithms for Infants with Hypoplastic Left Heart Syndrome; Birth through the First Interstage Period
Authors:Julie Slicker RD  CSP   CD  CNSC  David A. Hehir MD  Megan Horsley RD  LD   CSP  Jessica Monczka RD  LD/N  CNSC  Kenan W. Stern MD  Brandis Roman RD  CNSD  Elena C. Ocampo MD  Liz Flanagan MS  RD   CNSD  Erin Keenan RD  Linda M. Lambert CFNP  Denise Davis CPNP  Marcy Lamonica RN  MSN   CPNP  Nancy Rollison PNP  Haleh Heydarian MD  Jeffrey B. Anderson MD  MPH
Affiliation:1. Clinical Nutrition, Children's Hospital of Wisconsin, , Milwaukee, Wis, USA;2. Divisions of Pediatric Cardiology and Critical Care Medicine, Medical College of Wisconsin, , Milwaukee, Wis, USA;3. Clinical Nutrition, The Heart Institute, Cincinnati Children's Hospital Medical Center, , Cincinnati, Ohio, USA;4. Clinical Nutrition, Arnold Palmer Hospital for Children, , Orlando, Fla, USA;5. Department of Cardiology, Children's Hospital Boston, , Boston, Mass, USA;6. Clinical Nutrition, University of Virginia Children's Hospital, , Charlottesville, Va, USA;7. Division of Cardiology, Department of Pediatrics, The Baylor College of Medicine, , Houston, Tex, USA;8. Clinical Nutrition, Phoenix Children's Hospital, , Phoenix, Ariz., USA;9. Clinical Nutrition, Children's Hospital Boston, , Boston, Mass, USA;10. Department of Pediatric Cardiology, Primary Children's Medical Center, , Salt Lake City, Utah, USA;11. Division of Pediatric Cardiology, Cleveland Clinic, , Cleveland, Ohio, USA;12. Division of Pediatric Cardiovascular Surgery, Children's Hospital Boston, , Boston, Mass, USA;13. Division of Pediatric Cardiology, Yale University School of Medicine, , New Haven, Conn, USA;14. The Heart Institute, Cincinnati Children's Hospital Medical Center, , Cincinnati, Ohio, USA;15. The James M. Anderson Center for Clinical Excellence, Cincinnati Children's Hospital Medical Center, , Cincinnati, Ohio, USA
Abstract:Failure to thrive is common in infants with hypoplastic left heart syndrome and its variants and those with poor growth may be at risk for worse surgical and neurodevelopmental outcomes. The etiology of growth failure in this population is multifactorial and complex, but may be impacted by nutritional intervention. There are no consensus guidelines outlining best practices for nutritional monitoring and intervention in this group of infants. The Feeding Work Group of the National Pediatric Cardiology Quality Improvement Collaborative performed a literature review and assessment of best nutrition practices from centers participating in the collaborative in order to provide nutritional recommendations and levels of evidence for those caring for infants with single ventricle physiology.
Keywords:Nutrition  Hypoplastic Left Heart Syndrome  Feeding Guidelines  Enteral Nutrition  Parenteral Nutrition
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