帕金森病患者对疼痛认知体验质性研究

目的 了解帕金森病患者的疼痛体验及认知,为采取针对性疼痛护理措施提供依据。方法 运用质性研究中的现象学分析方法,对17例伴有疼痛的帕金森病患者进行半结构式访谈。访谈提纲包括6个问题：（1）您对帕金森病相关的疼痛了解吗?请您具体说说 （2）如果根据数字评分表(NRS)对疼痛进行评分,您觉得最高评分是多少? 可以谈谈您疼痛的感受吗?（3）当您感到疼痛时,您是如何应对的?（4）您是否向亲人或者医护人员主动说起您的疼痛经历?（5）您认为亲人和朋友的关心和支持对您重要吗?（6）针对帕金森病疼痛,您希望得到什么帮助呢?结果 共析出3个主题：疼痛体验深刻;对疼痛的应对不足;外源性支持不足。结论 疼痛严重影响帕金森病患者的生活质量,应重视患者的疼痛体验,加强知识宣教;关注居家照护,增加社会支持;立足评估治疗,加强疼痛管理,从而建立规范的疼痛管理模式,提高帕金森病患者的生活质量。

Qualitative Research on Pain Experience and Cognition of Patients with Parkinson's Disease

Objective To explore pain experience and cognition of patients with Parkinson's disease (PD) and provide reference for targeted nursing measures. Methods Guided by the phenomenological research method, we conducted in-depth interviews among 17 PD patients suffering pain. Six questions were included in the interview as described as follows: (1) Do you know anything about pain associated with PD? (2) Could you rate the intensity of pain according to the Numerical Rating Scale (NRS), and what is the highest score? Could you please tell us about your feelings? (3) How did you respond when you experienced pain? (4) Have you told your caregivers or medical staff about your pain? (5) Do you think that the care and support of your caregivers and friends are important to your recovery? (6) What kind of help do you want when facing Parkinson's disease pain? Results Three themes were extracted including deep pain experiences; shortage of ways of coping with pain; insufficient pain response. Conclusion Pain seriously affects the quality of life of patients with PD and great attention should be paid to patients' pain experience. Health education, home care, more social support, evaluation and treatment of pain and pain management benefit establishing a standardized pain management mode and improving the quality of life of patients with PD.