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Measuring health and well-being effects in family caregivers of children with craniofacial malformations |
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| Authors: | Nalin Payakachat J. Mick Tilford Werner BF Brouwer N. Job van Exel Scott D. Grosse |
| Affiliation: | (1) Division of Pharmaceutical Evaluation and Policy, Department of Pharmacy Practice, University of Arkansas for Medical Sciences, 4301 W. Markham St., #522, Little Rock, AR 72205, USA;(2) Department of Health Policy and Management, University of Arkansas for Medical Sciences, Little Rock, AR, USA;(3) Institute of Health Policy and Management, Erasmus University, Rotterdam, The Netherlands;(4) Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA, USA |
| Abstract: | PurposeThis research explores the sensitivity of three generic instruments for preference-weighting health states of family caregivers of children with craniofacial malformations (CFM). We also examine the construct validity of the new CarerQol instrument measuring caregiver burden and general quality of life. |
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