自我护理小组活动对麻风畸残预防的效果

目的:评价自我护理小组(SCG)模式对预防麻风畸残和改善社会参与的效果。方法:以具有组织领导能力的麻风致残者(DPAL)所在的社区为中心,召集周围的DPAL组成10~13人规模的4个SCG,每半年开展聚会和畸残预防教育活动一次,共6次,使用麻风畸残基础记录表和社会参与量表,每年评估SCG的效果。结果:共46例DPAL参加,经过3年的SCG模式干预,红眼分数下降81.25%,手皲裂分数下降83.75%,手伤口数量下降75%,足皲裂分数下降84.21%,足溃疡分数下降45.45%,未发生视力下降。参与量表得分从基线的37.37±17.30分,下降至第3年底的23.78±13.15分,社会参与受限率从基线时的73.91%,下降到第3年底的32.61%。结论:SCG模式干预对预防麻风患者的畸残和改善社会参与具有肯定效果。

Effects of Selfcare Group in preventing leprosy disability

Objective:To assess the effects of selfcare group (SCG) in preventing leprosy disability and promoting social participation. Methods:The disabled persons affected by leprosy ( DPAL) with good leader-ship and organization skills were selected as the SCG leaders, and DPAL from surrounding communities were recruited to form self-care groups ( 10 to 13 persons in each group) . The SCG got together every 6 months for 6 times. The SCG consultant evaluated the effects of SCG with the Baseline Disability Record Table and the Participation Scale at baseline each year. Results:There was forty six patients participated the SCG, The red eyes score decreased by 81.25%, hand fissures scores by 83.75%, hand wound counts by 75%, foot fissure score by 84.21% and foot ulcer score by 45.45% after 3-years intervention. The participation scale score de-clined from 37.37±17.30 to 23.78±13.15 and the limitation of social participation declined from 73.91% to 32.61% at the end of the study. Conclusion: SCG is effective in preventing disability and promoting social participation.