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Assessing the quality of life in infants with deformational plagiocephaly
Authors:Jacob J. Ryall  Yunfeng Xue  Kelly D. Turner  Phuong D. Nguyen  Matthew R. Greives
Affiliation:1. European Face Centre (Chair: Prof. Maurice Y. Mommaerts), Universitair Ziekenhuis Brussel, Vrije Universiteit Brussel, Belgium;2. Department of Mechanical Engineering, Biomechanics Section, KU Leuven, Leuven, Belgium;3. R&D Officer, CADskills BVBA, Gent, Belgium;1. Department of Oral and Maxillofacial Surgery, School of Dentistry, Seoul National University, Republic of Korea;2. Department of Orthodontics, School of Dentistry, Dental Science Research Institute, Chonnam National University, Republic of Korea;3. Dental Research Institute, Seoul National University, Republic of Korea;4. HSJ Dental Clinic for Oral and Maxillofacial Surgery, Republic of Korea;1. Private Practice for General Medicine, Hamburger Landstraße 26a, 24113 Molfsee, Germany;2. Medical University Center Hamburg-Eppendorf, Department of Oral and Maxillofacial Surgery, Martinistraße 52, Campus Forschung, 20246 Hamburg, Germany;3. Department of Oral and Maxillofacial Surgery, Schleswig-Holstein University Hospital, Arnold-Heller-Straße 3, Haus 26, 24105 Kiel, Germany
Abstract:This was a parent-reported outcome study on the impact of helmet therapy on the quality of life of infants with deformational plagiocephaly and their caregivers. Using survey-based analysis, we compared the quality of life in infants with deformational plagiocephaly with a cohort of their healthy peers. In addition, we compared infant quality of life before and after helmet therapy to evaluate the impact of this mainstay therapy for deformational plagiocephaly.Our results demonstrated that infants with plagiocephaly and their caregivers had a significantly decreased quality of life compared with healthy controls. This reframes our understanding of deformational plagiocephaly and emphasizes the need for therapeutic intervention in these individuals. A common therapeutic option — helmet remolding therapy — was shown to have no negative impact on quality of life, underscoring this as an appropriate therapeutic option. These data will allow us to counsel our future parents more effectively regarding the impact of deformational plagiocephaly and helmet therapy.
Keywords:Helmet therapy  Molding  Craniosynostosis  Cranial remodeling  Pediatrics  ITQOL-SF47"  },{"  #name"  :"  keyword"  ,"  $"  :{"  id"  :"  kwrd0040"  },"  $$"  :[{"  #name"  :"  text"  ,"  _"  :"  Infant–Toddler Quality-of-Life Short Form 47  SIDS"  },{"  #name"  :"  keyword"  ,"  $"  :{"  id"  :"  kwrd0050"  },"  $$"  :[{"  #name"  :"  text"  ,"  _"  :"  sudden infant death syndrome
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