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Information autour du dépistage organisé du cancer du sein. L’INCa et Cancer Rose répondent-ils aux critères des outils d’aide à la décision ?
Institution:1. Département de médecine générale, faculté de médecine Jacques-Lisfranc, Université Jean-Monnet Saint-Étienne, Saint-Étienne, France;2. Laboratoire SNA-EPIS EA4607, Saint-Étienne, France;3. HESPER Health Services and Performance Research EA7425, Lyon, France;1. Laboratory of Medical Epidemiology, Pasteur Institute of Tunis, 13, place Pasteur, BP-74, 1002 Tunis Belvedere, Tunisia;2. Bordeaux School of Public Health, University of Bordeaux 2, INSERM U897, 146, rue Léo-Saignat, 33076 Bordeaux cedex, France;1. Faculté de médecine et de pharmacie de Rabat, université Mohammed V, Rabat, Maroc;2. Délégation de la santé, Meknès, Maroc;1. Service des maladies respiratoires, centre hospitalier d’Aix-en-Provence, avenue des Tamaris, 13616 Aix-en-Provence, France;2. Comité national contre le tabagisme, 75002 Paris, France;3. Institut universitaire de cardiologie et de pneumologie de Québec, G1V 4G5 Québec, Canada;4. Pôle santé publique, CHU Grenoble-Alpes, 38043 Grenoble, France;5. Oncologie multidisciplinaire et innovations thérapeutiques, université Aix-Marseille, AP–HM, 13015 Marseille, France;6. Unité de coordination de tabacologie du CHRU de Nancy et université de Lorraine, 54500 Vandoeuvre Lès Nancy, France;1. Department of Family Practice, Faculty of Medicine of Saint-Etienne, University of Lyon, France;2. Regional Pharmacovigilance Unit, University Hospital of Saint-Etienne, France;3. Neurology-otorhinolaryngology Unit, University Hospital of Saint-Etienne, France;4. Laboratory of Infectious Agents and Hygiene, University Hospital of Saint-Etienne, France;1. Department of General Practice, Saint-Étienne, Jean Monnet University, 10, rue de la Marandière, 42270 Saint-Priest en Jarez, France;2. University of Lyon, Claude Bernard Lyon 1 University, Saint-Etienne University, 42023 Saint-Étienne, France;3. HESPER EA 7425, 69008 Lyon, France;4. The Clinic, Dubai International Financial Center, United Arab Emirates;1. Faculté de médecine Jacques-Lisfranc, département de médecine générale de Saint-Étienne, université Jean-Monnet Saint-Etienne, 10, rue de la Marandière, 42270 Saint-Priest-en-Jarez, France;2. Centre Max-Weber, Lyon, France;3. Service de médecine interne, CHU de Saint-Étienne, hôpital Nord, 42270 Saint-Priest-en-Jarez, France
Abstract:BackgroundControversies around organized breast cancer screening emphasize the need for information for women. In France, the institute of cancer (INCa) is in charge of conveying this information. Cancer Rose's website (CR) provides complementary information considering INCa's incomplete. The objective of this study was to identify if these informations meet criteria for decision aid.MethodsInformation documents were selected and analyzed using International Patient Decision Aid Standards (IPDAS). Each item was noted A (absent), P (present) or I (present but incomplete).ResultsInformation booklet and press kit for INCa and studies section for CR were the document meeting most criteria. The document meeting fewer criteria were the INCa's video and information leaflet for CR. Videos are more accessible tools for people with lower levels of health literacy. INCa's video did not present the risks of screening and CR's emphasized the risks.ConclusionThese documents have not been evaluated for intelligibility, clarity and readability. Addressing these criteria limits social inequities and improves health literacy.
Keywords:Communication  Shared decision making  Breast cancer  Screening
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