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The pattern of family burden was compared in 32 relatives of schizophrenic patients and 32 relatives of people with mental retardation, using a standardised semistructured interview named “Accertamento della Disabilità e del Carico Familiare” (Assessment of Disability and Family Burden). There were few quantitative differences between the two samples of relatives, although relatives of schizophrenics presented a tendency for a higher degree of both objective and subjective burden in some areas. Problems frequently reported were the presence of emotional distress, poor social relationships and lack of holidays or free time activities. Relatives of schizophrenics specifically claimed the presence of financial difficulties, while those of people with mental retardation were concerned by problems with neighbours.  相似文献
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为了了解城乡结合区精神分裂症患者家庭负担现状及城乡患者之间家庭负担的区别,采用FIS和DAS量表分别对病例组和对照组患者及其主要照顾者进行调查,分析,结果发现,病例组家庭负担明显高于对照组,经济负担农村高于城市,而主观负担城市高于农村,病例组FIS与DAS密切相关,某些FIS单项分布与病程相关,表明精神分裂患者确实给家庭带来明显的客观和主观负担,客观负担与患者的社会功能密切相关,主观负担与家属的态  相似文献
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Background The prevalence of minor children in families with a severely mentally ill member, these children's needs for support and the situation of the spouses were investigated as part of a multi-centre study of the quality of the mental health services in Sweden performed in 1986, 1991 and 1997. Methods The sample was drawn from relatives of compulsorily and voluntarily admitted inpatients to acute psychiatric wards. The instrument used was a semi-structured questionnaire, interviewing relatives about the burden of relatives, their needs for support and participation in care and items concerning the situation of the under-aged children in these families. Results The results over the years investigated showed the same proportion of patients admitted to hospital who were also parents to minor children and a decreasing proportion of patients who had the custody of their children. Female patients were more often a parent and also more often had the custody of the children. The majority of the children had needs for support caused by their parent's illness and these needs were met in half of the cases. The healthy spouses in families with minor children more often had to give up their own occupation and to a higher extent experienced own needs for care and support from psychiatric services compared to spouses without minor children. Conclusions The study supports that there is an urgent need for the psychiatric services to initiate parental issues in programmes for treatment and rehabilitation to ensure that the specific needs of minor children are met. Accepted: 28 November 2001  相似文献
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Abstract.Background: Schizophrenia as a chronic mental disorder not only has far-reaching consequences for patients, but also for their family members or other informal caregivers. In this study, we investigated whether needs for care of patients with schizophrenia are related to (negative) consequences for their informal caregivers.Method: A total of 287 patients with schizophrenia and their informal caregivers participated in the EPSILON study of schizophrenia in five European countries. Caregiver consequences were measured by the Involvement Evaluation Questionnaire (IEQ) and needs for care by the Camberwell Assessment of Need (CAN).Results: Total number of needs for care as well as specific areas of needs for care of patients appeared to be only weak predictors of caregiver consequences in terms of explained variance.Conclusion: Subjective needs for care as measured by the CAN are not a good indicator for consequences experienced by the informal care system of patients with schizophrenia.  相似文献
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This study examined the direct effects of short-term psychoeducation on relatives of inpatients with schizophrenia, with the goal of introducing this type of support program into standard care. The subjects were 46 relatives of inpatients with schizophrenia who attended three or four sessions of psychoeducation. Levels of anxiety and subjective burden and distress were measured before and after sessions using self-administered rating scales. In addition, levels of expressed emotion were also measured. Results showed that both state and trait anxiety on the State-Trait Anxiety Inventory were significantly lower after psychoeducational intervention than before intervention. In addition, subjective burden and distress reported by the family significantly decreased on the subscales for family confusion resulting from a lack of knowledge of the illness and anxiety about the future, subjective burden and depression resulting from the patient's illness, and difficulties in the relatives' relationships with the patient. Comparison of high and low expressed emotion families showed that the intervention was almost equally effective for the two groups. However, its effectiveness with regard to the subjective burden and depression experienced by the families was significantly greater among high expressed emotion families. The present study confirmed that family psychoeducation during hospitalization, even for a short period, is effective for all families, whether high or low expressed emotion. Moreover, the results suggested that the intervention may have a greater effect on emotional factors in high expressed emotion families than in low expressed emotion families.  相似文献
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目的 探讨肝硬化患者的情绪、社会支持、家庭负担与生活质量的相关性.方法 通过整群抽样方法选取兰州市某三甲医院108例肝硬化患者,采用一般情况调查表、医院焦虑抑郁量表(HADS)、社会支持评定量表(SSRS)、诺丁汉健康量表(NHP)和疾病家庭负担量表(FBS)进行评定.结果 HADS-A评分≥9分者107例(99.1%),HADS-D评分≥9分95例(88.0%).年龄<50岁、50≤年龄≤60岁、年龄>60岁的三组患者在疼痛(P=0.010)、活动(P=0.002)、NHP总评分(P=0.024)方面差异均有统计学意义;NHP中除睡眠以外的5个维度和总评分与HADS-A、HADS-D、HADS总评分呈正相关(P<0.05或0.01),NHP的精力、情感和总评分与FBS各维度评分及总评分呈正相关(P<0.05或0.01);FBS总评分、抑郁、家庭经济负担和年龄对预测NHP总评分作用显著.结论 FBS总评分、抑郁、家庭经济负担、年龄对肝硬化患者的生活质量影响明显.  相似文献
8.
目的::探讨精神分裂症患者家庭负担的影响因素。方法:应用家庭负担访谈问卷( FEIS)、阳性和阴性症状量表( PANSS)及自知力和治疗态度问卷( ITAQ)对334例精神分裂症患者及其照料者进行评估。结果:回归分析显示患者的性别、婚姻状况、病情程度及自知力完善程度,以及照料者就业状况、是否与患者同住及与患者接触频率均为家庭负担的影响因素。结论:影响精神分裂症患者家庭负担的因素复杂多样,精神科卫生从业人员应有针对性地对患者及其家庭成员进行心理干预以减轻家庭负担。  相似文献
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Introduction: This study explores burden and social and professional support in families of young patients with muscular dystrophies (MDs) in Italy. Methods: The study was carried out on 502 key relatives of 4‐ to 25‐year‐old patients suffering from Duchenne, Becker, or Limb‐Girdle MD who were living with at least 1 adult relative. Results: A total of 77.1% of relatives reported feelings of loss, 74.0% had feelings of sadness, and 59.1% had constraints in leisure activities. Burden was higher among relatives of patients with higher disability and who spent more daily hours in caregiving. Practical difficulties were higher among relatives who perceived lower help in patient emergencies and less practical support by their social network. Psychological burden was higher in those relatives who were unemployed, those with poorer support in emergencies, and those with lower social contacts. Conclusions: Caring for patients with MDs may be demanding for relatives even in the early stages of these disorders, especially when social support is poor and the patient's disability increases. Muscle Nerve 52 : 13–21, 2015  相似文献
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