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61.
Purpose: To review the psychometric properties and evaluate the estimates of validity of commonly used instruments to measure autonomy and control over nursing practice.
Design: Literature review and evaluation of psychometric properties.
Methods: Nursing research reports published in English in peer-reviewed journals between 1990 and 2007 were examined. Psychometric properties and the actual instrument were reviewed to determine validity for measuring autonomy and control over nursing practice.
Findings and Conclusions: Instruments used to measure autonomy and control over nursing practice are frequently imprecise or inaccurate for measuring the concept of interest. Valid instruments are available to allow measurement of the concepts of clinical autonomy, work autonomy, and control over nursing practice. Clear definitions and valid measures are helpful when communicating and synthesizing nursing knowledge concerning these concepts.
Clinical Relevance: Evaluating the validity of instruments for measuring clinical autonomy, work autonomy, and control over nursing practice can be helpful when organizing and synthesizing the literature related to these concepts, so that strategies to improve professional practice environments becomes more clear.  相似文献   
62.
63.

Introduction

Previous data examining the effect of gender on surgical trainee autonomy is lacking. We hypothesized that female general surgery residents have less autonomy than males during laparoscopic cases.

Methods

We retrospectively reviewed factors associated with level of guidance needed during laparoscopic procedures as reported on intraoperative procedure feedback forms and on FLS tasks from one institution from 2013 to 2016. Data collected included resident and attending gender, level of guidance needed, PGY level, case characteristics, resident intraoperative performance, and skills lab FLS performance. Univariate and multivariate analyses were performed using a mixed-effects regression model.

Results

We analyzed data from 106 PGY1-PGY5 residents (51% Female) and 104 attendings (26% Female). Female resident gender was associated with more intraoperative guidance in univariate (p?=?0.019) and multivariate analysis (p?=?0.034). Technical performance between genders was similar.

Conclusions

This study demonstrated gender-based inequality in intraoperative autonomy even after controlling for technical performance, PGY level, and case factors.  相似文献   
64.

Context

The predominating definition of autonomy as a capacity to make an independent rational choice may not be suitable for patients in palliative care. Therefrom arises the actual need for more contextualized perspectives on autonomy to promote the quality of life and satisfaction with care of terminally ill patients.

Objectives

This review aimed to develop a theoretical structural model of autonomy at the end of life based on patients' end-of-life care preferences.

Methods

In this review, we used systematic strategy to integrate and synthesize findings from both qualitative and quantitative studies investigating patients' view on what is important at the end of life and which factors are related to autonomy. A systematic search of EMBASE (OVID), MEDLINE (OVID), Academic Search Complete (EBSCO), CINAHL (EBSCO), and PsycINFO (EBSCO) was conducted for studies published between 1990 and December 2015 providing primary data from patients with advanced disease.

Results

Of the 5540 articles surveyed, 19 qualitative and eight quantitative studies met the inclusion criteria. We identified two core structural domains of autonomy: 1) being normal and 2) taking charge. By analyzing these domains, we described eight and 13 elements, respectively, which map the conceptual structure of autonomy within this population of patients.

Conclusion

The review shows that maintaining autonomy at the end of life is not only a concern of making choices and decisions about treatment and care but that emphasis should be also put on supporting the patients' engagement in daily activities, in contributing to others, and in active preparation for dying.  相似文献   
65.

Objective

The Changing Childbirth in British Columbia study explored women’s preferences and experiences of maternity care, including women’s role in decision-making.

Methods

Following content validation by community members, we administered a cross-sectional online survey exploring novel topics, including drivers for interventions, and experiences of autonomy, respect, or mistreatment during maternity care. Using the Mothers Autonomy in Decision-Making (MADM) scale as an outcome measure in a mixed-effects analysis, we examined differential experiences by socio-demographic and prenatal risk profile, type of care provider, interventions received, and nature of communication with care providers.

Results

A geographically representative sample of Canadian women (n?=?2051) reported on 3400 pregnancies. Most women (95.2%) preferred to be the lead decision-maker during care. Patients of physicians had significantly lower autonomy (MADM) scores than midwifery clients as did women who felt pressured to accept interventions. Women who had a difference in opinion with their provider, and those who felt their provider seemed rushed reported the lowest MADM scores.

Conclusion

Women’s autonomy is significantly altered by model of maternity care, the nature of interactions with care providers, and women’s ability for self-determination.

Practice Implications

If health professionals acquire skills in person-centred decision-making experience of autonomy among pregnant women may improve.  相似文献   
66.
The Dutch Euthanasia Act (EA) took effect in 2002 and regulates the ending of one’s life by a physician at the request of a patient who is suffering unbearably. According to the Dutch Supreme Court, unbearable suffering is a state for which the presence of a medical condition is a strict prerequisite. As a consequence, the Dutch EA has attributed the assessment of unbearable suffering to physicians who evaluate the presence of a medical classifiable disorder. Currently, a debate within the Netherlands questions whether older people, without a medical condition, who value their life as completed, should be granted euthanasia. To concede the autonomy of such a person, the Dutch government intends to create a separate legal framework that regulates this tired of living euthanasia request. This debate is crucial for policy-makers and an international audience because it discusses if a self-directed death of older people, should be implemented in (the current Dutch) euthanasia practice. However, this article argues that the current legal proposal that regulates the tired of living euthanasia request ignores crucial jurisprudence on physicians’ application of the unbearable suffering criterion in practice. Furthermore it points out that this proposal neglects physicians role in guaranteeing a euthanasia practice of due care and that its use of an ethic of absolute autonomy could jeopardize this well-established practice.  相似文献   
67.
AimThe purpose of this study was to identify whether the onset of falls is associated with reduced autonomy among individuals in the second half of life.MethodsLongitudinal data (with 7626 observations) were drawn from the German Ageing Survey, which is a nationally representative sample of individuals residing in private households ≥ 40 years. An established scale developed by Schwarzer was used to assess perceived autonomy. Falls in the preceding 12 months served as the main independent variable. Age, marital status, employment status, income, self-rated health, physical functioning and the number of physical illnesses were adjusted for in the analysis.ResultsAdjusting for potential confounders, linear fixed effects regressions showed that the onset of falls was associated with lower perceived autonomy (β=-0.06, p < .01). This link was moderated by neither sex, age nor education. Moreover, a decrease in perceived autonomy was associated with worsening self-rated health (β=-.03, p < .01) and decreases in physical functioning (β = .002, p < .001). Furthermore, changes from employment to retirement were associated with an increase in perceived autonomy (β = .07, p < .05).ConclusionsThe study findings suggest that avoiding falls may assist in maintaining autonomy in the second half of life.  相似文献   
68.
ObjectiveOur study sought to (1) describe the practices and preferences of Colombian adolescents in accessing sexual and reproductive health services: accompanied versus alone; (2) compare actual practices with stated preferences; and (3) determine age and gender differences regarding the practice and these stated preferences.Methods812 participants aged 11–24 years old answered a survey in two Profamilia clinics in the cities of Medellin and Cali in Colombia. A cross-sectional analysis was performed to compare participants’ answers based on the variables of gender and age.ResultsA quarter of participants visited the clinic alone (25.4%). Females were more likely to go alone in comparison to males (26.3% vs 14.1%; p = 0.031), and older participants went alone more often than younger participants (p < 0.001). Most participants – 72.7% (95 %CI: 69.3–75.9) – expressed a preference in being accompanied to the clinic, and more than 90% had their preferences met. The preferences of older participants were, however, less likely to be met than those of younger participants (p < 0.001), notably, because they predominantly wanted to be accompanied.ConclusionContemporary public health and bioethics literature advocates in favor of developing health services that better meet the preferences of adolescents. The present research highlights an apparent blind spot related to the role that others (e.g., parents, friends, partners) can or should play in accompanying adolescent patients when they access sexual and reproductive health services. Respecting adolescents’ preferences, and hence their autonomy, is not simply a matter of ensuring freedom from constraints (e.g., their right and ability to go alone). Rather, it should also consider the liberty to choose whether to be accompanied when accessing SHRS and by whom.  相似文献   
69.
70.
ObjectiveTo assess the quality of national cancer screening program leaflets in Japan from the informed-decision perspective.MethodsCross-sectional content analysis of invitation leaflets issued by centralized organizations and used nationwide in Japan was conducted. Three members independently evaluated the materials using International Patient Decision Aids Standards six-item minimum criteria for qualifying patient decision aids.Patient public involvementCo-author KH is a cancer patient himself. We also sought feedbacks from three other cancer survivors and two bereaved family members.ResultsInter-rater agreement was substantial (Fleiss’ kappa=0.62). The median score was 2 out of 6 (range: 2–3). All leaflets described the cancer (Q1: 7/7) and screening modality (Q2: 7/7). None stated not undergoing screening as an option. One stated another screening modality (Q3: 1/7). None stated both the positive and negative features of multiple options (Q4: 0/7. Q5: 0/7). One described the psychological and social experience of screening but only its positive side (Q6: 1/7).ConclusionsThere is room for improvement in the content of the public cancer screening invitation leaflets in Japan from informed-decision perspective.Practice implicationsCancer screening leaflets should provide evidence-based, well-balanced, easy-to-understand information to educate people on cancer screening while maintaining people’s autonomy.  相似文献   
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