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1.
Ohaeri JU 《Social psychiatry and psychiatric epidemiology》2001,36(2):86-93
Background: In Nigeria, there are no national social welfare and community rehabilitation programmes for the mentally ill. Families
have to bear the major burden of care. The present study aimed to assess the severity of indices of burden among relatives
of 75 schizophrenics and 20 major affective disorder cases, to identify the factors associated with burden, to assess the
relationship between caregiver burden and patients' perception of social support, and to compare these with equivalent data
for cancer patients' relatives. Method: Caregivers were assessed, using a burden questionnaire and Goldberg's General Health Questionnaire (GHQ-12). Patients were
assessed for perception of social support from the extended family. Results: Clinical severity and burden indices were similar for the psychiatric illness groups. However, relatives of patients with
psychotic symptoms, unco-operative behaviour, marital instability and unemployment had significantly higher GHQ scores; while
patients from such families perceived a wider social support network. Financial burden was greater than effect on family routines.
Disruption of family routines, GHQ scores and (inversely) size of family network patient expected support from, predicted
global rating of burden. Although clinical severity and disruption of family routines for cancer patients were higher; relatives
of psychiatric patients had higher GHQ scores, more family disharmony and greater social stigma. Conclusions: Disturbed behaviour is a greater determinant of severity of burden than psychiatric diagnosis; hence adequacy of treatment
is a first step in reducing caregiver burden. The tolerance shown by this group of relatives implies that they have strong
potentials for playing useful roles in community care. Research and policy should consider measures to strengthen extended
family network ties in developing countries.
Accepted: 13 November 2000 相似文献
2.
Magliano L Fadden G Economou M Held T Xavier M Guarneri M Malangone C Marasco C Maj M 《Social psychiatry and psychiatric epidemiology》2000,35(3):109-115
Background: To date, only few data are available on how family burden in schizophrenia changes over time. In addition, no study has
explored how such factors as coping styles and social support influence burden over time. This paper presents the 1-year follow-up
data from the BIOMED I study on family burden and coping strategies in schizophrenia. Methods: A sample of 159 relatives of patients with schizophrenia living in five European countries was followed up prospectively
for 1 year with regard to burden and coping strategies, using validated questionnaires. Results: In the sample as a whole, the burden was stable. A reduction of family burden over time was found among relatives who adopted
less emotion-focused coping strategies and received more practical support from their social network. In addition, family
burden decreased in relation to the improvement of patient's social functioning. Conclusions: When relatives of patients with schizophrenia are able to improve their coping strategies, it is possible for burden to
be reduced even after several years. This points to the necessity to provide families of chronic psychotic patients with psychoeducational
interventions emphasising the adoption of an effective coping style.
Accepted: 22 November 1999 相似文献
3.
The impact of professional and social network support on the burden of families of patients with schizophrenia in Italy 总被引:2,自引:0,他引:2
Magliano L Marasco C Fiorillo A Malangone C Guarneri M Maj M;Working Group of the Italian National Study on Families of Persons with Schizophrenia 《Acta psychiatrica Scandinavica》2002,106(4):291-298
OBJECTIVE: (a) To explore burden related to caregiving and support received from professionals and social network in relatives of patients with schizophrenia in Northern, Central and Southern Italy; and (b) to test whether a higher level of family burden is associated with a lower level of professional and social network support. METHOD: Seven hundred and nine patients with schizophrenia and their key-relatives were consecutively recruited in 30 Italian mental health departments. Data were collected on: (a) patients' clinical status and levels of disability; (b) relatives' burden, social and professional support; (c) interventions received by patients and their families. RESULTS: Family burden was found lower in Northern Italy. However, after controlling for psychosocial interventions, differences in family burden among the three geographical areas disappeared. Family burden was associated with patients' levels of disability and manic/hostility symptoms, and with professional and social network support received by the family. CONCLUSION: Professional and social network support represent crucial resources to reduce family burden in schizophrenia. 相似文献
4.
Nathan P. Young DO Jasper R. Daube MD Eric J. Sorenson MD Margherita Milone MD PhD 《Muscle & nerve》2010,41(6):758-762
The purpose of this study was to describe the frequency of absent, unrecognized, or minimal myotonic discharges (MDs) in myotonic dystrophy type 2 (DM2). We performed a retrospective review of needle electromyography (EMG) data prior to genetic diagnosis in 49 DM2 patients at the Mayo Clinic. MDs were not reported on first or repeat EMG studies (n = 8) and not found in archived recordings of 4 patients (8%); archived EMG recordings (n = 4) confirmed the absence of MDs (n = 2), including 1 patient with normal insertional activity in all muscles, and misinterpretation of MDs as slow fibrillation potentials (n = 1) and complex repetitive discharge (CRD) activity (n = 1). Eight (16%) patients had minimal classic MDs with diffusely increased insertional activity, including waning‐only MDs in all patients in this group with archived EMG recordings (n = 5). Diffuse MDs were found in 33 (67%) patients. Absent or minimal MDs do not exclude DM2. Over‐reliance on diffuse MDs in patients who present with myopathy may lead to delay in genetic diagnosis of DM2. Muscle Nerve, 2010 相似文献
5.
Setsuko Hanzawa PhD Jeong‐Kyu Bae PhD Hideki Tanaka PhD Goro Tanaka PhD Yong Jun Bae Masahiro Goto MD PhD Hiroyuki Inadomi PhD Yasuyuki Ohta MD PhD Hideyuki Nakane MD PhD Yoshibumi Nakane MD PhD 《Asia-Pacific psychiatry》2009,1(3):120-129
Introduction: In the present study, we compared the care burden and stigma experienced by families of patients with schizophrenia in Japan (Niigata) and Korea (Seoul and Daegu) to elucidate similarities and differences in the sociocultural factors that affect the care experience of families in East Asia. Methods: Factors such as care burden (evaluated using the eight‐item short version of the Zarit Caregiver Burden Interview [ZBI‐8]), stigma, and social distance were evaluated in members of support groups for families of mentally ill individuals in Japan (n=47) and Korea (n=92) using an interview questionnaire. Interviewees reported their personal attitudes (personal stigma and social distance) and perceptions of the attitudes of others in the community (perceived stigma) with respect to a case vignette. These vignettes described a person with chronic schizophrenia. Results: The data analysis revealed the following: (i) feelings of care burden (according to ZBI‐8), perceived stigma, and social distance were significantly stronger in Japan compared to Korea, and (ii) feelings of personal stigma were significantly stronger in Korea than in Japan. Discussion: The care burden and stigma experienced by families of patients with schizophrenia differed between Japan and Korea. The present findings suggest that to provide effective support for reducing family stigma and care burden, the necessity of such support must be emphasized in both countries. 相似文献
6.
Shibre T Kebede D Alem A Negash A Deyassa N Fekadu A Fekadu D Jacobsson L Kullgren G 《Social psychiatry and psychiatric epidemiology》2003,38(1):27-34
Background: Studies have consistently shown that both the subjective and objective dimensions of burden among family members of schizophrenia
patients and other psychiatric disorders are prevalent. However, as most of these reports were from western societies, we
lack information on the subject in developing countries. Method: The study was conducted within the framework of the ongoing epidemiological study of course and outcome of schizophrenia
and bipolar disorders in a rural population of 15–49 years of age. Three hundred and one cases of schizophrenia and their
close relatives participated in the study. Results: Family burden is a common problem of relatives of cases with schizophrenia. Financial difficulty is the most frequently endorsed
problem among the family burden domains (74.4 %). Relatives of female cases suffered significantly higher social burden (Z
= 2.103; p = 0.036). Work (Z = 2.180; p = 0.029) and financial (Z = 2.088; p = 0.037) burdens affected female relatives more
often than males. Disorganised symptoms were the most important factors affecting the family members in all family burden
domains. Prayer was found to be the most frequently used coping strategy in work burden (adj. OR = 1.99; 95 % CI = 1.08–3.67;
p = 0.026). Conclusion: Negative impact of schizophrenia on family members is substantial even in traditional societies such as those in Ethiopia
where family network is strong and important. The scarce existing services in the developing countries should include family
interventions and support at least in the form of educating the family members about the nature of schizophrenia illness and
dealing with its stigma and family burden.
Received: 15 January 2002 / Accepted: 29 July 2002
Correspondence to Gunnar Kullgren, MD, PhD 相似文献
7.
Boudewijn T.H.M. Sleutjes MSc PhDEng Ellen M. Maathuis MD Pieter A. van Doorn MD PhD Joleen H. Blok PhD Gerhard H. Visser MD PhD 《Muscle & nerve》2016,53(2):222-226
Introduction: The aim of this study was to determine whether electrically evoked multiplet discharges (MDs) are related to severity of clinical deterioration in motor neuron disease (MND). Methods: Stimulated high‐density surface electromyographic (HDsEMG) recordings were performed in thenar muscles. Data were collected from 31 MND patients. MDs from the HDsEMG recordings were determined at baseline. ALSFRS‐R scores were obtained at baseline and at a maximum of 16 weeks follow‐up. Results: The presence of MDs was associated with progressive deterioration of ALSFRS‐R score (P = 0.02) and fine motor function (FMF) (P < 0.001). Patients who had a higher number of motor units that generated MDs (r = 0.61, P < 0.001) and patients who had a higher number of MDs (as percentage of applied stimuli) (r = 0.59, P = 0.001) had a more severe decline in FMF. Conclusions: Electrically evoked MDs are associated with more marked clinical deterioration in patients with MND. Muscle Nerve 53: 222–226, 2016 相似文献
8.
Magliano L Fiorillo A Rosa C Maj M;National Mental Health Project Working Group 《Acta psychiatrica Scandinavica. Supplementum》2006,(429):60-63
OBJECTIVE: To compare burden and social network in families of patients with schizophrenia or physical diseases. METHOD: A total of 709 relatives of patients with schizophrenia and 646 relatives of patients with physical diseases were recruited in 169 specialized units located in 30 randomly selected Italian geographical areas. RESULTS: In both groups, the consequences of caregiving most frequently reported as present were constraints in social activities, negative effects on family life and a feeling of loss. Objective burden was similar in the two groups, while subjective burden was higher in schizophrenia. Social support was lower among relatives of patients with schizophrenia than among those of the other group. CONCLUSION: These results highlight the need to provide families of those with long-term diseases with supportive interventions, aiming to: i) manage relatives' psychological reactions to patient's illness; ii) provide information on patient's disease; iii) reinforce relatives' social network, especially in the case of schizophrenia. 相似文献
9.
A. J. Levin 《Psychiatry》2013,76(3):283-299
Objective: The purpose of the present study was to investigate how patients with schizophrenia and their relatives learn about the diagnosis and to study their feelings and degree of satisfaction with the process of delivering that information. Method: A total of 16 individuals who had been recently diagnosed with schizophrenia spectrum disorders and 15 of their relatives were interviewed. The interviews were recorded, transcribed verbatim, and analyzed using grounded theory. Results: Twenty-six (86%) patients and relatives reported having first learned about the diagnosis by reading the patient’s release form or during an incidental encounter with personnel. Most patients and their relatives disagreed with the diagnosis and reported negative feelings about the way in which they learned about it. Only four (14%) patients and relatives fully understood why medications were prescribed. Relatives who received the diagnosis incidentally were more dissatisfied with the disclosure process and had poorer adherence to treatment. Conclusions: Development of empirical-based guidelines for delivering difficult news in psychiatry is needed to improve the way of communicating the diagnosis to patients and their relatives. 相似文献
10.
Basak Oven Ustaalioglu Ezgi Acar Mecit Caliskan 《International journal of psychiatry in clinical practice》2018,22(1):63-69
Objectives: We aimed to identify the predictive factors for the perceived family social support among cancer patients and caregiver burden of their family caregivers.Methods: Participants were 302 cancer patients and their family caregivers. Family social support scale was used for cancer patients, burden interview was used for family caregivers.All subjects also completed Beck depression invantery. The related socio-demographical factors with perceived social support (PSS) and caregiver burden were evaluated by correlation analysis. To find independent factors predicting caregiver burden and PSS, logistic regression analysis were conducted.Results: Depression scores was higher among patients than their family caregivers (12.5 vs. 8). PSS was lower in depressed patients (p?.001). Family caregiver burden were also higher in depressive groups (p?.001). Among patients only the depression was negatively correlated with PSS (p?.001, r?=??2.97). Presence of depression (p?.001, r?=?0.381) was positively correlated and family caregiver role was negatively correlated (p?.001, r?=??0.208) with caregiver burden. Presence of depression was the independent predictor for both, lower PSS for patients and higher burden for caregivers.Conclusions: The results of this study is noteworthy because it may help for planning any supportive care program not only for patients but together with their caregiver at the same time during chemotherapy period in Turkish population. 相似文献