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1.
People with rare, inherited chronic health conditions, such as hemophilia, face added physical, social, emotional, and fiscal challenges beyond those that are common to more prevalent chronic conditions. In 1975, a partnership among clinicians, consumers, and government agencies created a nationwide regional health delivery system that increased access to clinical care, prevention, and research, thereby improving health outcomes for people with hemophilia in the United States. Today, more than 130 Comprehensive Hemophilia Diagnostic and Treatment Centers in 12 regions serve 70%-80% of the nation's hemophilia patients. Health care leaders and advocates for other rare, expensive, chronic disorders may find that regionalization improves survival and reduces disability among affected populations. However, diverse and stable resources are needed to sustain such a model in our profit-oriented US health care arena.  相似文献   

2.
Zitter M 《Managed care (Langhorne, Pa.)》2005,14(2):52-4, 57-60, 63-4; quiz 66-7
Managed care organizations generally pay for expensive drugs that treat rare genetic diseases because few patients have these conditions, the conditions are often life threatening, and the benefit design mandates coverage. In most cases, the cost-control measures and management restrictions applied to many other specialty pharmaceuticals do not make sense for the orphan drugs used to treat extremely rare genetic conditions because treatment alternatives usually are lacking for rare conditions (e.g., Gaucher's disease) and because the per member per month costs for truly rare conditions are low. The increasing number of biologic and injectable therapies for more common conditions, however, is prompting managed care decision makers to manage these new therapies more actively. There is a potential that treatments for rare disorders will be swept up in this broad-based response. This article provides definitions, background, and stakeholder perspectives on this topic and describes recent trends and challenges in health system management of exceedingly rare genetic diseases. The author suggests that current protocols are appropriate for managing rare and ultra-rare diseases, and that applying more active management practices to less rare diseases is neither efficient nor productive; in fact, it may be counter-productive.  相似文献   

3.
Vietnam has experienced a period of economic and political transition from a command economy to one of market socialism. This transition has precipitated a shift in the policies concerning the private sector, as well as increased demand for services from the private health sector. The private sector has evolved, though more rapidly in the Ho Chi Minh City area, with the passing of laws and regulations concerning private practice. The policy maker's concern is to maintain the equity gains realized under the public health system while using the private sector growth to make improvements in the system's efficiency. The political process enabling expansion of the private health sector has been slow, and will continue to be measured as it seeks to create a national health system with a rational integration of the public and private sectors.  相似文献   

4.
Countries in transition, such as Serbia, have been going through obligatory system reforms, including the reform of the healthcare system. As a rule, occupational health becomes marginalized by the authorities who decide on medical care. In spite of the fact that this branch of medicine cares for working population that mostly carries the burden of transition, when material situation equals the existential minimum, its potentials are not recognized. On the other hand, the World Health Organization makes a remark that such population’s health is undermined now more than ever, and adopts a binding global plan for member countries and their experts in occupational health to take urgent measures for overall working people’s health according to their needs. It seems that former work method of biomedicine specialists could not realize such ambition. This paper discusses the possibilities of occupational health future orientation toward holistic medicine, for the sake of workers’ well-being and better quality of their lives, then creation of more humane society and vocational affirmation. Health promotion at workplace and salutogenic concept may have crucial roles. This concept is a huge challenge for academic public and vocational practitioners in poor countries in transition that are already burdened with the current economic and financial crisis. Each in their own way, helped by self-education and education, without big material investments, together they may take their countries to the road of health, the road still rarely taken, yet more secure.  相似文献   

5.
The Maternal Mortality Ratio is an important public health indicator that reflects both the quality of a health care system and the role of women within that society. In September 2000 the United Nations Millennium Declaration outlined the eight Millennium Development Goals (MDGs) that set targets to be achieved by 2015. MDG 5 focused on improving maternal health. It had two clear subgoals: to reduce maternal mortality globally by three quarters between 1990 and 2015 and to obtain universal access to reproductive health for women. Despite a global trend of declining maternal mortality only a handful of nations are currently ‘on track’ to achieve their MDG targets by 2015. The Islamic Republic of Iran is one of these nations. In just over three decades, Iran has undergone demographic transition with significant reductions in total fertility and population growth rates. In concert with this transition, Iran has achieved a dramatic decline in the maternal mortality ratio that has fallen to a rate comparable with developed nations. Significantly Iran has also experienced a paradigm shift in its major causes of maternal mortality from those characteristic of developing nations (postpartum haemorrhage, infection) to causes more commonly seen in developed nations (pulmonary embolus, stroke). There is no single explanation that may account for this transition, rather it is the product of a number of different initiatives that have incorporated family planning, grass roots focus and wider improvements within the health care system of Iran over the past three decades. However the experience of this nation may provide a useful example to other developing countries looking to reduce maternal mortality.  相似文献   

6.
PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling conditions that assist in transitioning from child- to adult-focused health services by (a) discrete types, (b) functional categories, and (c) problems and issues faced by these programs. METHODS: Nominations for transition health services programs were solicited from 1025 organizational agencies at the local, state, regional, and national levels. Two solicitations yielded 277 nominees. After pilot testing, a survey of 163 forced responses and open-ended questions was mailed to each nominated transition health services program. A total of 122 programs returned completed surveys. RESULTS: Program services were categorized as adolescent-focused (38%), condition-focused (36%), and specialty-specific programs (26%). Few programs were primary care-based. Categories were subsequently collapsed into two types: adolescent-focused and condition-focused. No significant differences were noted between adolescent- and condition-focused programs regarding provision of mental health services, vocational counseling, self-efficacy training, or health education. The primary barriers to transition health services were identified as funding and access to key staff, rather than family and adolescent resistance. CONCLUSION: In general, self-identified transition health care programs do not achieve the goal of collaborative, coordinated, and integrative services to adolescents with chronic or disabling conditions. Furthermore, the barriers to attaining the goal are the limitations of the health care system itself.  相似文献   

7.
Only a few decades ago, people who exhibited a strong interest in following a healthful lifestyle were considered odd and out of the mainstream. Today, almost the reverse is true. No one event or specific education program can be identified as a cause. The continuous flow of health information, particularly through the print media, is probably a major factor. There is a growing understanding that health is more than the absence of disease and that the conventional medical system offers primarily disease control. Rodale Press has capitalized on these trends by providing strong company support for healthful living. Specific programs, such as the People's Medical Society, have been devised to encourage the transition from doctor-patient relationships to person-doctor partnerships.  相似文献   

8.
INTRODUCTION: Turkey's primary health care (PHC) system was established in the beginning of the 1960s and provides preventive and curative basic medical services to the population. This article describes the experience of the Turkish health system, as it tries to adapt to the European health system. It describes the current organization of primary health care and the family medicine model that is in the process of implementation and discusses implications of the transition for family physicians and the challenges faced in meeting the needs for health care staff. In Turkey a trend toward urbanization is evident and more staff positions in rural PHC centers are vacant. Shortages of physicians and an ineffective distribution of doctors are seen as a major problem. Family medicine gained popularity at the beginning of the 1990s, as a specialty with a 3-year postgraduate training program. Medical practitioners who are graduates of a 6-year medical training program and are already working in the PHC system are offered retraining courses. Better working conditions and higher salaries may be important incentives for medical practitioners to sign a contract with the social security institution of Turkey. DISCUSSION: The lack of well-trained primary care staff is an ongoing challenge. Attempts to retrain medical practitioners to act as family physicians show promising results. Shortness of physician and health professionals and lack of time and resources in primary health care are problems to overcome during this process.  相似文献   

9.
OBJECTIVE--To assess the responsiveness of the SF 36 health survey questionnaire to changes in health status over time for four common clinical conditions. DESIGN--Postal questionnaires at baseline and after one year's follow up, with two reminders at two week intervals if necessary. SETTING--Clinics and four training general practices in Grampian region in the north east of Scotland. PATIENTS--More than 1,700 patients aged 16 to 86 years with one of four conditions: low back pain, menorrhagia, suspected peptic ulcer, and varicose veins; and a random sample of 900 members of the local general population for comparison. MAIN MEASURES--A transition question measuring change in health and the eight scales of the SF 36 health survey questionnaire; standardised response means (mean change in score for a scale divided by the standard deviation of the change in scores) used to quantify the instrument's responsiveness to changes in perceived health status, and comparison of patient scores at baseline and follow up with those of the general population. RESULTS--The response rate exceeded 75% in a patient population. Changes across the SF 36 questionnaire were associated with self reported changes in health, as measured by the transition question. The questionnaire showed significant improvements in health status for all four clinical conditions, whether in referred or non-referred patients. For patients with suspected peptic ulcer and varicose veins the SF 36 profiles at one year approximate to the general population. CONCLUSIONS--These results provide the first evidence of the responsiveness of the SF 36 questionnaire to changes in perceived health status in a patient population in the United Kingdom.  相似文献   

10.
The impact of the financial crisis has been uneven—with differences across industries and occupations. Jobs linked to health care appear better insulated, with nurses specifically showing labor force gains during the recent recession. What is not known is how important public sector employment opportunities are for these national nursing trends. Observing the universe of nurses working for one of the largest (and publicly operated) health care employers, we show that worsening economic conditions lead to stronger job attachment. Relatedly, older nurses also seem more willing to delay retirement and instead transition to part‐time positions during a downturn.  相似文献   

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