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1.
Barbara Mazurkiewicz Małgorzata Stefaniak Ewa Dmoch-Gajzlerska 《Disability and health journal》2018,11(4):618-623
Background
As estimated from the number of published studies, in Poland the research into the perinatal care experiences of women with low vision or total blindness remains limited.Objectives
The purpose of the study was to fill this gap by investigating satisfaction with perinatal care received by women with visual impairment in four city hospitals in Warsaw, Poland, and to recommend, if required, modifications in midwives' education and care standards based on the women's perceptions and expectations.Methods
Hour-long interviews were conducted between 30 August 2014 and 2 September 2015 with 16 blind or low vision women in perinatal care, audio-recorded and transcribed verbatim. The accounts were subsequently evaluated using the Interpretative Phenomenological Analysis (IPA) approach. Five major themes were pre-selected: perceived stigma and lack of affirmation for the interviewee's motherhood, accessibility of childbirth preparation, accessibility of perinatal care and hospital facilities, midwives' attitudes and the interviewees' expectations for care improvements.Results
Overall, the accounts demonstrated the lack of satisfaction with the quality of perinatal care, including the childbirth preparation classes, hospital facilities and hospital staff approach as not actually meeting specific functional needs. They also suggested how the quality of care could be improved.Conclusions
Specific standards and procedures for perinatal care for women who are blind or have low vision should be developed and introduced in clinical practice in Poland based on research into the experiences of these women. Also, the training of health care professionals should be modified and their attitudes changed to meet maternal needs. 相似文献2.
3.
Andrea C. Betts Katherine Froehlich-Grobe Simon Driver Danielle Carlton M. Kaye Kramer 《Disability and health journal》2018,11(2):315-323
Background
People with impaired mobility (IM) disabilities have a higher prevalence of obesity and obesity-related chronic conditions; however, lifestyle interventions that address the unique needs of people with IM are lacking.Objective
This paper describes an adapted evidence-based lifestyle intervention developed through community-based participatory research (CBPR).Methods
Individuals with IM, health professionals, disability group representatives, and researchers formed an advisory board to guide the process of thoroughly adapting the Diabetes Prevention Program Group Lifestyle Balance (DPP GLB) intervention after a successful pilot in people with IM. The process involved two phases: 1) planned adaptations to DPP GLB content and delivery, and 2) responsive adaptations to address issues that emerged during intervention delivery.Results
Planned adaptations included combining in-person sessions with conference calls, providing arm-based activity trackers, and adding content on adaptive cooking, adaptive physical activity, injury prevention, unique health considerations, self-advocacy, and caregiver support. During the intervention, participants encountered numerous barriers, including health and mental health issues, transportation, caregivers, employment, adjusting to disability, and functional limitations. We addressed barriers with responsive adaptations, such as supporting electronic self-monitoring, offering make up sessions, and adding content and activities on goal setting, problem solving, planning, peer support, reflection, and motivation.Conclusions
Given the lack of evidence on lifestyle change in people with disabilities, it is critical to involve the community in intervention planning and respond to real-time barriers as participants engage in change. A randomized controlled trial (RCT) is underway to examine the usability, feasibility, and preliminary effectiveness of the adapted intervention. 相似文献4.
Lillian Karina Diaz Rios Karen Chapman-Novakofski 《Journal of the Academy of Nutrition and Dietetics》2018,118(9):1687-1699
Background
Latinos/Hispanics are among the populations at high risk of nutrition disparities. Adequate participation of this group in community nutrition research is necessary to better understand such disparities and propose sensible solutions.Objective
To identify factors influencing participation and strategies to effectively reach Latinos/Hispanics for community nutrition research.Design
In-depth interviews with experienced community nutrition researchers across the United States, conducted from February to June 2013.Participants/setting
Nine academics, including four registered dietitian nutritionists with extensive experience in community nutrition research with Latino/Hispanic groups, were interviewed in person (n=3) or via telephone/Skype (n=6).Main outcome measures
Perceived participation barriers, facilitators, and structural factors affecting Latino/Hispanic participation were explored. Successful and unsuccessful recruitment strategies to reaching this group were identified.Analysis
A Grounded Theory approach was applied for inductive identification of relevant concepts and deductive interpretation of patterns and relationships among themes.Results
Formative work, cultural competency, and decisional balance emerged as the three interdependent factors influencing participation of Latinos/Hispanics in community nutrition research. Several approaches to influence participation were reported to be operationalized at the interpersonal, community and settings, and systems levels of influence. Trust, time, and tailoring were central concepts, postulated to moderate the relationship between the main themes and influence the effectiveness of recruitment tactics.Conclusions
Experienced community nutrition researchers identified actions ascribed to formative work as the bedrock of successful reach of Latinos/Hispanics. A robust formative work plan is necessary to achieving a functional level of trust, time, and tailoring tactics, which appear to critically influence participation. 相似文献5.
Background
Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity.Objective
To examine the association between accelerometer-assessed light-intensity physical activity and mortality in a national sample of American adults with mobility limitations.Methods
Data from the 2003–2006 National Health and Nutrition Examination Survey were utilized. Participants were followed through 2011. Based on self-report, analyzed participants included those with mobility limitations (N = 1369). Light-intensity physical activity was assessed via waist-mounted accelerometry.Results
For the sample, 108,010 person-months occurred with an all-cause mortality rate of 2.07 per 1000 person-months. After adjustments, for every 60 min/day increase in light-intensity physical activity, participants with mobility limitations had a 14% reduced risk of all-cause mortality (HR = 0.86; 95% CI: 0.75–0.98; P = 0.03).Conclusion
These findings underscore the importance of promoting light-intensity physical activity to those with mobility limitations. 相似文献6.
Background
Limited research has evaluated the relationship between dietary behavior and mortality among those with mobility limitations.Objective
To examine the association between dietary behavior and mortality in a national sample of American adults with mobility limitations.Methods
Data from the 2003–2006 National Health and Nutrition Examination Survey were utilized. Participants were followed through 2011. Based on self-report, analyzed participants included those with mobility limitations (N = 1369). Dietary behavior was assessed from the alternate healthy eating index (AHEI).Results
For the sample, 108,010 person-months occurred with an all-cause mortality rate of 2.07 per 1000 person-months. Dietary behavior was associated with reduced all-cause mortality risk when expressed both as a continuous variable and binary variable (i.e., meeting dietary guidelines). With regard to the latter, and after adjustments, those meeting dietary guidelines (vs. not) had a 40% reduced hazard of all-cause death (HR = 0.60; 95% CI: 0.38–0.97; P = 0.03).Conclusion
Among adults with mobility limitations, and thus, who unable to engage in sufficient physical activity, dietary behavior may have survival benefits. 相似文献7.
8.
Allyson Calder Jo Nunnerley Hilda Mulligan Nordawama Ahmad Ali Gemma Kensington Tim McVicar Olivia van Schaik 《Disability and health journal》2018,11(2):267-273
Background
For individuals with spinal cord injury the long term benefits of physical activity are well documented, however the majority of this population report inactivity secondary to participatory barriers. Research investigating physically intensive exercise programs for people with spinal cord injury is limited, with even less attention paid to the experience of the participants.Objective
To explore the experiences of persons with spinal cord injury of their participation in the New Zealand arm of the Spinal Cord Injury and Physical Activity (SCIPA) ‘Full-On’ randomized controlled trial.Method
Eight participants recruited to SCIPA Full-On completed individual virtual video diary interviews three times across the duration of their twelve week Full-On trial. Expectations and highs and lows of the program were recorded via a webcam. The video diary data were transcribed verbatim and analyzed inductively for themes.Results
Three independent themes were identified from the data: the participants' excitement of opportunity to participate in SCIPA Full-On’ randomized controlled trial, personal rewards from participation and also the frustrations to participation they experienced.Conclusion
This study provides valuable information on factors that motivate participation in physical activity for individuals with spinal cord injury, within a research setting. The findings highlighted the importance of accessibility and a supportive network which may be a way to provide individuals with spinal cord injury the means to become self-efficacious to participate in community physical activity outside of the research environment. 相似文献9.
Mónica Pinilla-Roncancio 《Disability and health journal》2018,11(3):398-404
Background
Disability and poverty are interconnected and although this relationship has been recognised, there is a lack of empirical evidence to support any possible causal relationship in this topic, particularly in the context of Latin America (LA).Hypothesis
This study tests the hypothesis “Disability increases the risk of multidimensional poverty of people living with disabilities and their families”.Methods
Using national census data from Brazil, Chile, Colombia, Costa Rica and Mexico, the Global Multidimensional Poverty Index (Global MPI) was calculated with the aim of measuring and comparing the levels of multidimensional poverty of people living in households with and without disabled members in the five countries.Results
We found that in the five countries people with disabilities and their families had higher incidence, intensity and levels of multidimensional poverty compared with people living in other households. Their levels of deprivation were also higher for all the indicators included in the Global MPI and the contribution of this group to the national MPI was higher than their share of the population, thus people with disabilities and their families are overrepresented in those living in multidimensional poverty.Conclusions
People with disabilities and their families are in worse conditions than poor households without disabled members and social policies should aim to reduce their high levels of multidimensional poverty and deprivation. 相似文献10.
Lindsey Turner Julien Leider Elizabeth Piekarz-Porter Marlene B. Schwartz Caitlin Merlo Nancy Brener Jamie F. Chriqui 《Journal of the Academy of Nutrition and Dietetics》2018,118(3):455-463
Background
The changes in school meal programs stemming from the Healthy, Hunger-Free Kids Act of 2010 have expanded interest in strategies that increase student participation in school lunch and reduce plate waste. However, it remains unclear what factors are associated with schools’ use of such strategies.Objective
This study examines whether state laws are associated with two types of school meal-related practices: (a) using promotional strategies (ie, taste tests, using posters or announcements) and (b) duration of lunch periods.Design
This cross-sectional study utilized the nationally representative 2014 School Health Policies and Practices Study, combined with corresponding state laws gathered by the National Wellness Policy Study. School data were available from 414 public schools in 43 states.Main outcome measures
Outcome measures included 16 strategies to promote school meals and the amount of time students had to eat lunch after being seated.Statistical analyses performed
Multivariate logistic regression and Poisson regression were used to examine associations between state laws and school practices, after accounting for school demographic characteristics.Results
Compared to schools in states with no law about engaging stakeholders in meal programs, schools in states with a law were more likely to conduct taste tests (64% vs 44%, P=0.016), collect suggestions from students (67% vs 50%, P=0.017), and invite family members to a school meal (71% vs 53%, P=0.015). Schools used more promotion strategies in states with a law than in states without a law (mean=10.4 vs 8.8, P=0.003). Schools were more likely to provide students at least 30 minutes to eat lunch after being seated in states with laws that addressed a minimum amount of time for lunch duration (43% vs 27%, P=0.042).Conclusions
State-level policy provisions are associated with school practices. Policy development in more states may support school practices that promote lunch participation and consumption. 相似文献11.
Kathryn P. Derose Bing Han Stephanie Williamson Deborah A. Cohen 《Women's health issues》2018,28(1):6-13
Introduction
Physical inactivity is more prevalent among women than men and is related to poor health outcomes. Neighborhood parks constitute an important resource for physical activity (PA), however, previous studies of park users have found fewer women being physically active.Methods
We conducted a hierarchical mixed-effect regression analysis of the independent associations between gender and park use and PA among a population-based sample in high-poverty neighborhoods in Los Angeles. Data sources included 1) structured interviews with adults (≥18 years of age) in randomly selected households within 1 mile of study parks (n = 2,973), 2) systematic observations of study parks (n = 48), and 3) neighborhood characteristics from the 2010 U.S. Census.Results
After controlling for race/ethnicity, education, body mass index of 30 kg/m2 or greater, health status, proximity to park, having children under the age of 18, perceived park safety, estimated screen time, and park- and neighborhood-level variables, statistically significant differences were found between women and men on all outcomes. Compared with men, women reported fewer park visits in the past week (?0.28 times/week; p < .001) and shorter durations of a typical park visit (?11.11 min/visit; p < .001). Women were also less likely than men to report levels of PA that meet national guidelines (≥150 minutes of moderate to vigorous PA per week; risk difference = ?0.06; p < .01) or to exercise in the park (risk difference = ?0.13; p < .001) or elsewhere (risk difference = ?0.13; p < .001).Conclusions
Women living in high-poverty neighborhoods use parks less for PA than men. Improved park-level design, programming, and other policy interventions may be needed to mitigate disparities in park use and PA for all. 相似文献12.
13.
Miles Saitta Hemakumar Devan Pauline Boland Meredith A. Perry 《Disability and health journal》2019,12(1):11-23
Background
Park-based physical activity (PA) interventions improve health in the general population, but it is unknown if the evidence can be translated to persons with disabilities.Objectives
To conduct a mixed-methods systematic synthesis of the evidence for park-based physical activity interventions for persons with disabilities and secondarily, to consider the health benefits across the lifespan (children and adolescents, young, middle, and older adults).Methods
All major electronic databases were searched from inception until 30th November 2016. Studies were eligible if the PA intervention was conducted in an urban park environment with people reporting a disability (e.g. physical, psychological and developmental impairments) and health outcomes were evaluated with biopsychosocial measures. Methodological quality was assessed using Crowes Critical Appraisal Tool (CCAT) and key findings extracted.Results
Six quantitative and four qualitative papers, comprising of 446 participants (age range seven to ninety-one years), were included for qualitative synthesis; five in children/adolescents, none in adults, and five in older adults. There was limited, low level, preliminary evidence for short-term improvements in physical, psychological, and social health outcomes in children and older adults with disabilities as well as improvements in disability-related impairments. When accessible, parks fostered societal inclusion.Conclusions
Health benefits from park use in persons with disabilities were identified. Parks may provide an alternative environment for rehabilitation and management of disabilities. Further randomized controlled trials evaluating the long-term effectiveness of park-based interventions is necessary to corroborate our findings. Legislative commitment ensuring urban parks are accessible may mitigate some health disparities in persons with disabilities. 相似文献14.
Background
Previous literature suggests that individuals with disabilities have increased rates of obesity and decreased participation in physical activity contributing to overall higher incidence of secondary health conditions compared to the general population without disabilities.Objective/hypothesis
The purpose of this research study was to examine the differences in physical activity rates for college students with Attention Deficit Hyperactivity Disorder (ADHD) and Learning Disabilities (LD).Methods
A secondary analysis was utilized to examine differences in physical activity rates based on disability, gender, and factors influencing participation in physical activity. The 2011 Fall National College Health Assessment was used as the reference group with a sample of 27,774 students. Multiple independent samples t-tests were utilized in this research.Results
The results of this study indicated that physical activity for college students with disabilities does not have significant variations compared to those without disabilities. However, gender influences participation in physical activity for this population.Conclusions
This research helps in narrowing the research gap in this topic through analysis of the college population with ADHD and LD. This paper concludes with implications that could benefit the health status of this population. 相似文献15.
Meredith Massey 《Disability and health journal》2018,11(4):502-509
Background
This paper is part of a series of articles documenting the development of a module on child functioning by UNICEF in collaboration with the Washington Group on Disability Statistics (WG). This paper documents the contribution of Cognitive Interview (CI) question evaluation methods to the development of the final module.Objective
The overall goal of this project was to develop a cross-nationally comparable module to measure child functioning and disability. Specifically, the goals of the question evaluation study were to investigate question interpretation, sources of error and bias and to use the results iteratively in the development of the final module.Methods
As is standard in CI studies, data were gathered through one-one-one, in-depth interviews. A total of four rounds of testing, comprising 385 Cognitive Interviews, were conducted across six countries. Qualitative data analysis methods were used to identify patterns of question interpretation and areas of potential error and bias among sub-groups of respondents.Results
Through an iterative process of testing and revision, analytic findings from these interviews were used to guide decisions on question inclusion, revision and deletion. Four types of revisions were made: 1) changing, deleting or adding specific words; 2) moving, deleting or adding clarifying phrases; 3) revising or deleting items for conceptual clarity; and 4) adding examples.Conclusions
These efforts to reduce error and bias resulted in a validated module that can provide cross-nationally comparable measures of child functioning. 相似文献16.
Laura S. Lorenz Ann L. Charrette Therese M. O&#x;Neil-Pirozzi Julia M. Doucett Jeffrey Fong 《Disability and health journal》2018,11(1):70-78
Background
Few people with chronic moderate-to-severe brain injury are following recommended physical activity guidelines.Objective
Investigate effects of planned, systematic physical activity while cultivating social and emotional well-being of people with chronic moderate-to-severe brain injury.Hypothesis
Moderate-to-intensive physical activity would be associated with improvements in impairment and activity limitation measures (endurance, mobility, gait speed) immediately post-intervention and six weeks later (study week 12).Methods
The intervention was a single group pre-/post-intervention study with 14 people with chronic moderate-to-severe brain injury who live in brain injury group homes and exercised 60–90 min, 3 days per week for 6 weeks at a maximum heart rate of 50–80%. Pre-post measures (administered weeks 0, 6 and 12) were the 6 Minute Walk Test, High-level Mobility Assessment Tool and 10 Meter Walk Test. The qualitative component used a brief survey and semi-structured interview guide with participants, family members, and staff.Results
Following program completion, post-intervention group changes were noted on all outcome measures and greater than minimal detectable change for people with brain injury. Three transitioned from low to high ambulatory status and maintained this change at 12 weeks. During interviews, participants agreed the program was stimulating. More than eighty percent liked working out in a group and felt better being active.Conclusions
Program impact included physical, cognitive and social/emotional aspects. Social aspects (group format, trainers) were highly motivating and supported by residents, family, and staff. Investments in transportation and recruiting and training interns to assist participants are critical to program sustainability and expansion. 相似文献17.
Background
Measurement of the environment is taking on increased importance for understanding variability in participation. Most measures of the environment use subjective ratings, yet little is known about how people appraise the environment.Objective
/Hypothesis: We conducted this post-hoc study to examine whether or not catastrophizing, an important variable for understanding how pain contributes to disability, may be related to ratings of the environment. We hypothesized higher pain catastrophizing scores would be associated with greater environmental barriers and fewer facilitators.Methods
Individuals with functional impairments (N = 525) were recruited from a population-based random sample of households in a small western city in the United States to complete a paper-based survey about their health and community living experiences. We conducted exploratory regression analyses to investigate associations with environmental factor ratings.Results
We found substantial associations between pain catastrophizing and both environmental barriers and personal factor problems after controlling for demographics, participation assessed by community trips per week, health conditions, impairment and pain level. The models accounted for 28% of the variance in environmental factor ratings and 52% of the variability personal factor ratings. We also present odds ratios for the association between personal characteristics and the likelihood of endorsing EF and PF.Conclusions
A variety of individual characteristics are associated with ratings of both environmental and personal factors that impact participation. Among these, pain catastrophizing is a robust predictor of EF and PF ratings which suggests future research designed specifically to test this relationship may generate useful results for developing interventions to increase participation. 相似文献18.
Megan Armstrong Christopher Morris Charles Abraham Mark Tarrant 《Disability and health journal》2017,10(1):11-22
Background
Children with disabilities are often the target of prejudice from their peers. The effects of prejudice include harmful health consequences. The Contact Hypothesis has previously shown to promote positive attitudes towards a range of social groups.Objective
To conduct a systematic review and meta-analysis on the effectiveness of school-based interventions for improving children's attitudes towards disability through contact with people with disabilities.Methods
A comprehensive search was conducted across multiple databases. Studies were included if it evaluated an intervention that aimed to improve children's attitudes towards disability and involved either direct (in-person) or indirect (e.g., extended) contact with people with disabilities. Data were synthesised in a meta-analysis.Results
Twelve studies met the inclusion criteria. Of these, 11 found significant effects: six used direct contact, two used extended contact, two used parasocial (media-based) contact and one used guided imagined contact. One parasocial contact intervention found no significant effects. Three meta-analyses showed direct contact (d = 0.55, 95% CI 0.20 to 0.90) and extended contact (d = 0.61, 95% CI 0.15 to 1.07) improved children's attitudes; there was no evidence for parasocial contact (d = 0.20, 95% CI -0.01 to 1.40).Conclusions
Direct, extended, and guided imagined contact interventions are effective in improving children's attitudes towards disability; there was no evidence for parasocial contact. 相似文献19.
Background
Enhanced methods of evaluation are necessary to identify community-based exercise interventions that promote physical activity and improve health and participation for individuals with disabilities. The heterogeneity of the populations served, interventions implemented, and outcome measures used remains a barrier to effectively evaluate programs and generate evidence to inform best practice.Objective
To explore goals and benefits of community-based exercise for individuals with disabilities and determine barriers and facilitators to evaluation in a community setting.Methods
We conducted semi-structured interviews with exercise participants and staff of a community-based exercise program for individuals with disabilities. We then coded responses to interview questions for themes using thematic analysis or deductive content analysis, with codes linked to categories within the International Classification of Functioning, Disability and Health (ICF).Results
Identified goals and benefits spanned the ICF domains of Body Functions and Activities and Participation. Commonly cited goals and benefits included improving strength and endurance, general health, self-efficacy, community participation, and the importance of returning to exercise. Barriers and facilitators to evaluation identified by staff included maintaining a balance between evaluation and services, negative attitudes toward evaluation, access to data, and consistency with scheduling.Conclusions
These results can be used to enhance evaluation within community-based exercise programs for individuals with disabilities, which may improve both the quality and impact of these programs. 相似文献20.
Carlos Ayán-Pérez R. Iván Martínez-Lemos José M. Cancela-Carral 《Disability and health journal》2017,10(1):105-113