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Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from the pediatric stage into adulthood
Authors:Jane S. Hankins  Jeremie H. Estepp  Jason R. Hodges  Martha A. Villavicencio  Leslie L. Robison  Mitchell J. Weiss  Guolian Kang  Jerlym S. Porter  Sue C. Kaste  Kay L. Saving  Paulette C. Bryant  Jeffrey E. Deyo  Kerri A. Nottage  Allison A. King  Amanda M. Brandow  Jeffrey D. Lebensburger  Oyebimpe Adesina  Stella T. Chou  Babette S. Zemel  Matthew P. Smeltzer  Winfred C. Wang  James G. Gurney
Affiliation:1. Department of Hematology, St. Jude Children's Research Hospital, Memphis, Tennessee;2. Department of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, Tennessee;3. Department of Biostatistics, St. Jude Children's Research Hospital, Memphis, Tennessee;4. Department of Psychology, St. Jude Children's Research Hospital, Memphis, Tennessee;5. Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee;6. Department of Diagnostic Imaging, St. Jude Children's Research Hospital, Memphis, Tennessee;7. Department of Radiology, University of Tennessee Health Science Center, Memphis, Tennessee;8. OSF Healthcare Children's Hospital of Illinois, University of Illinois College of Medicine, Peoria, Illinois;9. Department of Pediatric Hematology and Oncology, Novant Health Hemby Children's Hospital, Charlotte, North Carolina;10. Department of Pediatric Hematology/Oncology, Our Lady of the Lake Children's Hospital, Baton Rouge, Louisiana;11. Janssen Research & Development, Raritan, New Jersey;12. Program in Occupational Therapy, Washington University in St. Louis, St. Louis, Missouri;13. Section of Pediatric Hematology/Oncology, Medical College of Wisconsin, Milwaukee, Wisconsin;14. Department of Pediatric Hematology and Oncology, University of Alabama at Birmingham, Birmingham, Alabama;15. Division of Hematology, University of Washington, Seattle, Washington;16. Division of Hematology and the Apheresis Program, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania;17. Department of Gastroenterology, Hepatology, and Nutrition, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania;18. School of Public Health, University of Memphis, Memphis, Tennessee
Abstract:
Keywords:disease‐modifying therapy  natural history  sickle cell anemia
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